- Go read Richard Bloch's (founder of HR Block) letter to newly diagnosed cancer patients and his book 'Fighting Cancer' both are online.
Letter to newly diagnosed cancer patients
Fighting Cancer
- Join the ACOR prostate cancer mailing list. I can't stress how much the mailing list for my cancer (Sarcoma) helped me (both emotionally and with sound medical advice). I've made life long friends there (and lost some to this damn disease) and there are people there that are heroes in my opinion. Pre cancer I'd scoff at the idea of support groups. Just one of the many ways cancer changed me in a positive way.
ACOR Prostate Mailing List
- Get to know PubMed. It's an amazing tool. You can find out a LOT about the latest research for you condition and frequently if you contact the doctors publishing the paper they'll give you advice (they cared enough about your cancer to publish a paper on it).
PubMed
- 1-800-4CANCER (http://cancer.gov) National Cancer Institute is your friend. Call and ask any question. Treatment, clinical trials, emotional support, they'll help. Amazingly friendly. I had someone there go spend time in a medical library, copy a ton of useful info and mail it to me.
- Get to a cancer center! Lots of doctors will treat your condition. Find one that works with a multi disciplinary team and sees a LOT of patients with your cancer.
- Get a second opinion. Always. No matter how much you like your doctor. If she is good she won't mind at all.
- As we all know. Stats don't dictate outcome. If you had a condition that was only 5% fatal in the first 5 years and you died did the stats matter? Ditto if it's 95% fatal and you live. Concentrate on fighting this beast and living life!
Kids are clamoring to go do something or I'd probably ramble on for a lot longer. Hang in there! Keep us posted.
tjs